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Resources and useful links

Neurodevelopmental Disorders constitute a major research and public health issue. It is all the communities concerned that must join forces to advance research. Whether you are a healthcare professional, a person concerned or a caregiver, the GIS has selected a set of links and resources for you, to find out more about the fields of investigation of the network and the involved partners.

French national strategy for Autism and NDD

  • Cohorte Marianne : See the website
  • French national ASD-NDD council composition (in French) : See the website
  • French national strategy for Autism and NDD website : Presentation of the strategy 2023-2027 (in French) : See the website
  • Interministerial delegation for neurodevelopmental disorders strategy (in french) : See the website

Scientific partner institution

  • CEA : French Atomic Energy and Alternative Energies Commission : See the website
  • CNRS : National Centre for Scientific Research : See the website
  • INRAE : French National Research Institute for Agriculture, Food and the Environment : See the website
  • INSERM : French National Institute for Health and Medical Research : See the website

ASD-NDD National centers of excellence

  • ceAND : AS-NDD National centers of excellence, Montpellier : See the website
  • exac-t : AS-NDD National centers of excellence, Tours : See the website
  • iMIND : AS-NDD National centers of excellence, Lyon (in French) : See the website
  • InovAND : AS-NDD National centers of excellence, Île de France (in French) : See the website
  • STRAS&ND : AS-NDD National centers of excellence, Strasbourg (in French) : See the website

Scientific partners

  • DéfiScience : National health sector - Rare Diseases of Neurodevelopment (in French) : See the website
  • ERN ITHACA : European Reference Network for Rare Malformation Syndromes, Intellectual and Other Neurodevelopmental Disorders : See the website
  • Fondamental foundation : Foundation dedicated to the fight against mental illness : See the website
  • GDR 3557 : Psychiatry institute (in French) : See the website
  • GDR Sommeil : Research Group about sleeping disorders (in French) : See the website
  • Genetrek – Pasteur Institute : Online database on genes involved in neurodevelopmental disorders : See the website
  • GénoPsy : See the website
  • Götteborg University : See the website
  • IRN Dev-O-Psy : Developmental and biological basis of psychosis onset in adolescents and young adults – International research network (France – Quebec) (in French) : See the website
  • National medecine academy : See the website
  • Neural network development club : See the website
  • Neurosciences society : See the website
  • Newborn Brain Society : See the website
  • PEPR PROPSY : See the website
  • R2D2-MH : Risk and Resilience in Developmental Diversity and Mental Health : See the website
  • Research Group Microglia and neuroinflammation : See the website
  • RMIT Europe : See the website
  • SFNP : French Society of Paediatric Neurology (in French) : See the website
  • SINPIA : Italian society of child and adolescent neuropsychiatry (in italian) : See the website
  • TSAF-R : Transversal scientific actions for Fetal alcohol syndrome disorders-related research : See the website

Non-profit assiocative partners

  • Agir et vivre l’autisme : Association for support dedicated to autonomy, communication and inclusion (in French) : See the website
  • ARAPI : Association for Research on Autism and the Prevention of Maladjustments (in French) : See the website
  • Autism Europe : International Association for the Rights of People with Autism and the Improvement of Their Quality of Life : See the website
  • Autisme France : Association recognized as being of public utility (in French) : See the website
  • Autistes sans frontières : National coordination for an inclusive society - children, adolescents, adults (in French) : See the website
  • Collectif DI : See the website
  • EFAPPE : Federation of associations of people with disabilities due to severe epilepsies (in French) : See the website
  • Fédération Française des Dys : French Federation for Dys disorders (in French) : See the website
  • FOBAP : Bresciane Foundation for Psychohandicap Assistance (in Italian) : See the website
  • HandiVoice : Self-representatives think tank (in French) : See the website
  • HyperSupers TDAH France : French association to help families, adults and children affected by Attention Deficit Hyperactivity Disorder (ADHD) (in French) : See the website
  • Les Amis d'Arthur : The association has 900 members who want to promote the inclusion of people with autism and change the way society views this disability : See the website
  • Monaco Disease Power : See the website
  • Nous Aussi : French association of self-representatives of people with intellectual disabilities (in French) : See the website
  • PAARI : Autistic Persons for Responsible and Innovative Self-Determination (in French) : See the website
  • Robert Debré non-profit : See the website
  • Sésame Autisme : Association of parents serving people with ASD (in French) : See the website
  • Sesame Autisme : The first association for parents of autistic children and adults, set up in Paris in 1963 : See the website
  • UNAPEI : National Union of Associations of Parents, People with Mental Disabilities and Their Friends (in French) : See the website
  • Xtraordinaire : French association of families affected by a rare genetic disease whose common feature is neurodevelopmental disorders linked to the X chromosome : See the website

Participative research

  • AASPIRE : Academic Autism Spectrum Partnership in Research and Education : See the website
  • Génida : International and participatory internet database for genetic forms of intellectual disability and / or autism : See the website
  • GRAM : non-profit associations thinking group (in French) : See the website
  • INSERM Science and society department (in French) : INSERM department dedicated to the coordination and promotion of participatory research (in French) : See the website

Other ressources

  • Autisme – dossier INSERM : An NDD affecting interpersonal relationships (in French) : See the website
  • Embracing complexity : Group of British associations working to improve the quality of life of people with NDD : See the website
  • GNCRA : National Group of Autism Resource Centres (in French) : See the website
  • INSERM collective expertise: Developmental coordination disorder or dyspraxia: Summary and recommendations (in French) : See the website